What we have done for ourselves alone dies with us; what we have done for others and the world remains and is immortal.~Albert Pike

From Danny Kenny’s Family:

Danny Kenny was born on December 31, 2012, diagnosed with Tay Sachs in 2013 (a fatal genetic disorder) and passed away on May 16, 2015. †It is our wish to honor his memory by paying off his
medical bills and finding a cure.

Dannyís illness required a lot of extra attention from full time home nurses and special equipment to support him for most of his life. †The family is currently facing financial hardships from the insurmountable medical bills which include a bill for airlifting him†to Children’s Hospital of Philadelphia in his final weeks.

danny//embedr.flickr.com/assets/client-code.jsWe are appreciative of all of the efforts to support this incredible family and our goal is to continue to assist the Kenny family in any way we can.† Our goal is to raise at least $25,000 to support Steve, Eileen†and†Connor. Any amount is greatly appreciated.//embedr.flickr.com/assets/client-code.js

Once the medical bills are taken care of and any extra money will be distributed evenly in Danny’s name between the 2 organizations fighting for a cure. Those organizations are the National Tay-Sachs and Allied Diseases Association, Inc. (NTSAD) and The Cure Tay-Sachs Foundation.

Information about the organizations and the disease can be found at: †National Tay-Sachs & Allied Diseases association†and Cure Tay-Sachs.

To donate, please visit and give even a $1.00 to helping spread awareness about Tay-Sachs or participate in the Family Day of Hope for Tay-Sachsin New York on September 12th.

ìNever underestimate the power of a single act of kindness to make a significant difference in someoneís life.î

You can also donate to the family at GoFundMe, and there is even an option to share and print posters. Thank you for any contribution or shares when I know time is a luxury and money is a scarcity for many.

Please share this post with others to spread awareness about Tay-Sachs and the importance of being screened. There is currently no cure, and it’s a terrible disease that brings heartbreak to so many†families. Thank you.